The Rise of The New Bio-Citizen


Under the designation “patient-led research” or “citizen-driven biomedical research,” citizens, patients, and families have increasingly become the leading force in the initiation and conduct of health research projects. These bio-citizens are pursuing a range of activities from analyses of genomic data for diagnosing rare diseases, identification of potential therapeutic drugs, organization and crowdfunding of clinical trial cohorts, and even self-surveillance or self-experimentation.